WDSD '12: A Sister's Big Love

Wednesday, March 21, 2012

Today is World Down Syndrome Day. 3-21-12.
It is celebrated on this day because people with Down Syndrome have an extra copy of the 21st chromosome. So they have three copies of chromosome 21, instead of two. So 3-21.

Last night we stayed up late making matching T-Shirts for the kids.

(These are their rock star looks)



I had to get creative on the back because we ran out of letters. R's are upside down J's, the D's an upside down P. All of the numbers are made from letters. I think it works though, right?

Ace has been super into making videos with our Flip camera lately. It is pretty hilarious how serious she is about it. She wanted to make a movie for World Down Syndrome Day. She actually worked really hard on this. She came up with what to say, what they would wear, where each scene would take place. I am so proud of my sweet girl and her heart.




Raising a child with Down Syndrome is challenging.
But it is so worth all of the incredible blessings that come along with it.

Lots of Love!
Lisa

18 comments:

Anonymous said...

This just may be the cutest video i have ever seen! i found your blog through a mutual friend (tesney) and i have loved every minute of it but this video is precious, Ace has such a sweet heart and love for her brother and i can tell the feeling is mutual!

Amy L said...

That was so precious! I teared up several times. I love looking at pictures of your children together but to actually see them in action and listen to Ace talk about Archie was the most beautiful thing I've seen! God Bless you and your precious kiddos! I think they both ROCK:)

Anonymous said...

Very Touching. I hope lots of people can see this. Ace did such a great job (So did Archie). Your kids are Awesome!!!!

Jessica said...

Who wouldn't want Archie?!?!!? Way to go Ace!

Amber said...

Love this. I can totally see them still being best friends as adults. Do you mind if I share?

Lisa said...

Thanks so much! Yes, you may absolutely share!

Amy Hubbard said...

This, seriously, is the cutest thing I've EVER seen. You should send it to Reese's rainbow and the Sundance Film Festival!! Your whole family rocks.

viv said...

Wow Thankyou Ace

Stephanie Turner said...

This is marvelous! Your daughter is obviously gifted and your son is absolutely precious. My sister has Down Syndrome, and I've watched this video several times today and shared it on my facebook walls for other mom's who adopted through Reece's Rainbow. Do you mind if I share your blog?

stephaniemturner@bellsouth.net

Kristen said...

What an angel that little Ace is! We have a son at the arbor school. I wish we could have met. Thanks for sharing this. I was crying the whole way through it.

purplecat said...

What a wonderful video! My brother has downs syndrome, and I can truly say he has been a blessing in my life :) Thanks for sharing your story.

uOSFL said...

What adorable kids and amazing video! Thanks to the three of you for making it. Shared it here: http://ottawastudents4life.wordpress.com/2012/04/19/who-wouldnt-want-this-precious-little-boy/

The Artemis Project said...

Thank you so much for sharing this!! This video actually made me cry, you are such a special family and must be so proud of both Ace and Archie.

I just started reading your blog today and have really enjoyed it. I just graduated college and am currently working on applying to grad school to get a masters degree in special education, and I want to specialize in chromosomal disorders. It hurts my heart whenever I hear about people who don't want a child with down syndrome because every moment I get to spend with those children is a blessing. It is so wonderful what your family has done. Both your children are beautiful and seem very happy. God bless!

Britta said...

I just shed tears watching this video! You are a beautiful family! I have taken care of kids via babysitting and being an aid with DS before, and they are the most loving people I have ever met! I shared this on my Facebook, because everyone needs to see it.

Anonymous said...

I admire your decision to adopt a child. But I think there is a paradox in raising your children to be icons of equality for people with the syndrome.

Your 46-chromosome child is being raised to be a promoter of your 47-chromosome child. I mean, a lot of the video has been coached, it's easy to tell.

It's no different than I'd be uncomfortable watching a blond kid getting raised to raise awareness that gingers are being bullied more. The blond kid would be forced to live through an identity that is outside of itself. Through another person.

The t-shirt isn't about her, it's about her brother. And at the age where all children usually feel they're the centre of the world, as a part of growing up.

Anyways, I hope you don't take offence. I am still convinced that you did a beautiful thing by adopting a child. And how you raise your children is your business.

jtw said...

I just wanted to tell you that although your kids are cute, that all comes down to parenting (and I don't want to take that away from them because they are as cute as can be)...but in that department, I think all parents should be jealous of the marvelous job you're doing. I wish you the best for yourself and your family.

Anonymous said...

Cute! Adorable! Brother ,Sister Love! I have worked in group home with adults with downs syndrome. & have friends with downs syndrome.1 young women I met when she was 14. Now in her 20s.

David Edward said...

sharing - i am in tears. God's love is so evident in your family! Praise Him.

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